living after the death of a baby, living with Autism, living as a family of six, living on our organic homestead, living miserably, hopefully, and with joy, and somedays just living

I’m exhausted, things are crazy here.  We’ve been trying to combat a behavior with E and were just getting into the thick of it now.  It’s been excruciating, trying to get in to a specialist, that some referring doctors don’t want to help you get in to see (or rather non referring doctors).  I’ve had to explain the situation to doctors, therapists and friends.  I’ve talked to kyle about it at length.  And now I would like it to be over because it’s, so draining and deflating.  Talking about the negatives of your kid is hard, because you don’t get to talk about all the positive, there’s not enough time, and it’s not relative to the negative behavior were trying to curb, so it gets left out.    But just because I’ve talked about it until it felt like I might be making it up (have you ever told a story so often it no longer feels like yours?), doesn’t make it over, it fact it’s just beginning because now we start the interventions.  So I’ve been out of any motivation to blog , well actually I have blog ideas that I would like to share, just not enough energy at the end of the day or mental capacity to put together a coherent idea.    So for now I going to skip tonight’s blog post and go breath deeply and go to bed early.

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Comments on: "in, out, in, out a lesson in breathing" (2)

  1. Huge huge hugs to you Erron. I hope things come together for you guys soon, both with the behavior and with the specialist.

  2. That sounds pretty stressful. When something is going on and you try to do different things, different approaches to deal with it. It can be very rewarding if you see a benefit, like with the positive responses you have had to food changes. But I am sure very disheartening when you don’t have a solution to a problem. Good luck, hope the specialists can offer some help.

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